Jake and Morgan are interested in hearing about your routine! What do you do to make your day run smoothly? Join us July 27!

Name: Caroline Spencer

Age: 33

Where do you call home? I am from Cincinnati, OH but just moved to Massachusetts, near Worcester.

Education/Career: I recently completed my PhD in speech pathology! Because of FA, I know what it is like to be a patient, and I feel that it gives me empathy for people with other kinds of disabilities and communication disorders, too. Being a patient myself makes me aware that research should not only be scientifically interesting, but meaningful to the patients, too.

What is a typical day for you? Mornings start with taking care of my service dog, Clark and getting us both ready for work. I am a postdoctoral fellow in the Communication and Neurodevelopment Lab at Boston University. In this post-COVID summer, I am going to work some days and work from home the others. I usually go for a walk with Clark at lunchtime. In the evening, my boyfriend and I will either cook something at home or go out to dinner. On the weekends, I like to work around the house or ride my trike.

Name: Christiane Wick-Jüttner

Age: 54

Where do you call home? I live in a small village in Hessen, Germany.

Education/Career: I studied educational science at the Justus Liebig University in Giessen and am a qualified pedagogue. I actually wanted to become an architect, but as my illness progressed, the student advisory service advised me against it.

Who do you live with? I live with my husband and two children in a large house with a big garden. Our son is a shepherd by profession, that's why we have 3 herding dogs.

What is a typical day for you? My husband dresses me in bed, puts me in the wheelchair, empties my urine bag in the bathroom, helps me with my daily morning hygiene and prepares my breakfast. Then I work on my computer, read the daily newspaper or a book. I am also often out and about in nature with my wheelchair traction device. We have a large circle of friends and everyone in our small village knows me, so I actually always have conversations. In the evening my husband brings me to the bathtub and carries me from there to bed.

Name: Ribar Mohamad

Age: 30

Where do you call home? United States of America

Education/Career: I finished high school in my home country of Syria and right now I’m learning English in the USA.

Who do you live with? I live with my family in our home.

What is a typical day for you? I do physical therapy and speech therapy, studying English at college, and doing some exercises at home.