Name Osama Alawik

Age 20

Where do you call home? Tripoli, Lebanon

Education: Ever since I was young, I have had an obsession with computers. When I was diagnosed with FA, I didn't think I would be able to achieve that dream. I knew it would be physically difficult, but I was going to do it. I finished high school three years ago with Information Technology diploma and now I’m studying Computer Science.

Who do you live with? I am single and I am currently living in Istanbul, Turkey.

Join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. This is simply a place to meet and talk to other people who may be going through struggles and good times similar to you. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going.

Join our Thursday night hangout this month in a discussion lead by FARA ambassador Kyle Waterman about "Tips and Tricks" that make living with ataxia easier Tell us what you do, learn what other teens do. Help other teens (and FARA Ambassadors) by sharing your life hacks. Join us to talk or just listen. We are sure you'll find you aren't alone! It is just a relaxed conversation...the theme gets us going, but we definitely don't stick to it! It isn't counselling.

Name: Brett Davis

Age: 38

Where do you call home? Fayetteville, NC

Education degree(s): Associates degree in computer programming

Who do you live with? I live by myself.

What's a typical day for you? I try to exercise somehow every day. I like to play a little chess with the FA friends and take care of myself.

How long have you known you are living with FA? I was clinically diagnosed when I was 12, so 26 years ago. It wasn't confirmed in a test until I was 15.

Are there any others with FA in your family? No

Join the FARA Ambassadors for a hangout for teenagers, 13-19, with ataxia (of any form). FA Teen Hangouts are hour-long web-based hangouts. If you don't have ataxia, you are not allowed to participate in the hangout. This is simply a place to meet and talk to other people who may be going through struggles and good times similar to you. There will also be at least three adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going. Join our Saturday hangout this month to talk with Kate Walker and Madelyn Fredrick about having a YouTube channel. They each have FA YouTube channels. So, let's talk to them about how they do it, how it helps others, and how it helps them. Join us to talk or just listen. We are sure you'll find you aren't alone! It is just a relaxed conversation...the theme gets us going, but we definitely don't stick to it! It isn't counselling.