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Energy Ball - Join Us for a Virtual Event on November 7!



View the Energy Ball Support Package


For donation information, please contact Ava Forney  (813) 600-8179  ava.faraenergyball@curefa.org

Thank you considering a donation to support FARA. Personal and corporate donations can be designated in honor of a particular person or in support of the FARA Energy Ball.

Online

You can donate by credit card online by clicking the button below. Your transaction is safe, secure, and private. The online credit card processor charges 3.3% of your donation for their processing fee.

By Phone

You can donate over the phone by calling Ava Forney at the FARA Energy Ball, (813) 600-8179, (includes international donations). We will need your name, address and credit card information. The credit card user fee charged to FARA is 2.6% of your donation.

By Mail or Fax

You can download the Credit Card Authorization form and mail it in or fax it to (813) 387-8102 (includes international donations). You can send a check or money order to FARA at:

The FARA ENERGY BALL
PO Box 26454
Tampa, FL 33623-6454

The Friedreich's Ataxia Research Alliance (FARA) is a 501 (c) 3 non-profit organization.
Donations to FARA are tax deductible. FARA's tax ID number is 52-2122720.

 
 

Breakthrough Supporters

Capacity Builders

Technology Innnovator

Groundbreakers

Patrick Henry Creative Promotions
Andrew & Lily Hupp

Balanced CFO & Account Services LLC
Louis and Kelly Varsames

The 12th FARA Energy Ball will take place as a virtual event on Saturday, November 7, 2020. The program will be live streamed and will provide a virtual bidding platform for our Silent and Live Auction items.

If you wish to make an in-kind donation for use in our auction, please make your commitment by completing this

Auction Commitment Form

or emailing Ann Musheno at ann.musheno@curefa.org.

Our organization appreciates anything you might be willing to give in support of our auction. This year, we have a special request for gift certificates or small items that can be easily mailed rather than large physical items (such as baskets) to allow for easy shipping.

If you have any questions about donating an item for this year’s auction, please contact FARA at 484-879-6160 or the 2020 Energy Ball Auction Co-Chairs Anna Alfano at anna.faraenergyball@curefa.org; or Amy Hull at amy.faraenergyball@curefa.org

Honorary Chair Council

Suzanne and Paul Avery, Chairman, FARA Board of Directors
Ron Bartek
, President, FARA
Charles J. Lockwood, M.D., M.H.C.M.  Senior Vice President, USF Health

Honorary Chairs

Janell and Steve Griggs, Tampa Bay Lightning CEO


Honorary Committee Members

Anna & Frank Alfano
Dorothy Alfonso
Alison Avery
Laurel Avery
Michael Barbaro
Lexi Barkett
Lori & Anthony Barkett
Debbie & Bob Basham
Steve Blair
Tom Bradley
James Buell
Sandy & Bob Callaghan
Sofia Parker Chang
Lauren Cooper
Trudy & John Cooper
Janey DePew
Tanya & Herman Fernandez
Sarah & Jason Foglia
Lori & Matt Hill
Amy & Kurt Hull
Mary & Paul Jacobs
Pamela & Chris Kelsch
Lisa & Vic Lafita
Dawn & Kevin Lambert
Susan McLaughlin
Pastor Jane McDonough
Kaye & Jim Pollard
Nancy & Brad Rex
Mary Ridgeway
Julie Robertson
Kathy & Doug Rothschild
Wendy Ryan
Susie Snowdon
Sandi & Chris Sullivan
Georgette & Chris Tsavoussis
Kelly & Lou Varsames
Bridget & Richard Verrecchia
Heidi & Bill Wright
Avery Lowry Zaritsky
Theresa Zesiewicz, MD FAAN
 

 

Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Most individuals have onset of symptoms of FA between the ages of 5 and 18 years. Adult or late onset FA is less common, <25% of diagnosed individuals, and can occur anytime during adulthood. FARA is supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.

For a summary of research progress made possible by proceeds from the Energy Ball, Click Here.

Click Here view our Journey To The Cure graphic
Journey To The Cure graphic

 

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