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About FARA's Research Program

 
FARA supports research through funding competitive grants across the spectrum from basic research through drug development and clinical research programs in Friedreich's Ataxia (FA). We promote collaboration among scientists, advocate for public-private partnerships and host open forums for leading scientists to share their insights and ideas to advance therapeutic development for FA.

FARA's Grant types, Deadlines, and Budget Limits are described in the table below. You can view special interest requests for proposals (RFPs) and other grant program updates and announcements here.

All investigators interested in FA-related research are invited to submit a Letter of Intent (LOI) through our submission portal. All proposed research must fall within FARA's Grant Program Priorities. For more information on how to apply for a FARA grant, click here.

Grant types, Deadlines, and Budget Limits
Grant Type Letter of Intent
(LOI) Deadline
Application Deadline Award Notice Grant start dates Maximum Budget
(in US dollars)
 +  General Research Grant Feb 15
Aug 15
Apr 15
Oct 15
Aug 1
Feb 1
Sep 1 - Oct 1
Mar 1 - Apr 1
$125,000 per year for 1 or 2 years
 +  Award for Innovative Mindset (AIM) No LOI Feb 1 May 1 Jun 1 - Jul 1 $100,000 for 1 year
 +  Keith Michael Andrus
Cardiac Award
Jan 15 Mar 15 Jul 1 Aug 1 - Sep 1 $150,000 per year
for 1 or 2 years
 +  Kyle Bryant Translational
Research Award
Jan 15 Mar 15 Jul 1 Aug 1 - Sep 1 $250,000 per year
for 1 or 2 years
 +  Bronya J. Keats
Research Collaboration Award
Jan 15 Mar 15 Jul 1 Aug 1 - Sep 1 $200,000 per year
for 1 or 2 years
 +  Postdoctoral
Research Award
Feb 15
Aug 15
Apr 15
Oct 15
Aug 1
Feb 1
Sep 1 - Oct 1
Mar 1 - Apr 1
$100,000 per year
for 1 or 2 years
 +  Postdoctoral
Fellowship
Feb 15
Aug 15
Apr 15
Oct 15
Aug 1
Feb 1
Sep 1 - Oct 1
Mar 1 - Apr 1
Trainee salary
up to 2 yrs
 +  Graduate Research Fellowship Mar 15 May 15 Sep 1 Oct 1 - Nov 1 $50,000 per year up to 3 years
 +  Request for Proposals
and Ad-hoc Requests
FARA will issue requests for proposals (RFPs) on an ad-hoc basis.
The FARA Fellow Program

The FARA Fellow Program recognizes young investigators who will commit their early career to FA research. Growing and training the next generation of FA scientists is a priority for FARA and this program provides young investigators the opportunity to grow their profile within the research community and network with other investigators, together with a cash award and opportunity to attend scientific conferences. Eligible candidates are postdoctoral trainees who have demonstrated or hold promise for outstanding research achievements in FA. Both new and existing postdoctoral trainees with fewer than 6 years working as a postdoctoral trainee, accounting for career disruptions, and fewer than 4 years working in an FA lab as a postdoctoral trainee, can be nominated to receive the award. Nominations must be submitted by the trainee’s PI or prospective PI and consist of the trainee’s CV, documentation providing evidence that the PI can support the trainee’s salary for 2 years and a letter briefly describing how the trainee’s qualities and research accomplishments will support FARA's mission of developing treatments and a cure for FA.

The award consists of $10,000 USD and financial support to attend one scientific conference per year and the FARA & CHOP FA Symposium in Philadelphia (maximum covered cost of $4000 USD that includes: airfare in coach class, hotel accommodation and conference registration fees. These expenses will be reimbursed directly by FARA). Postdoctoral trainees can be nominated and receive the award for a maximum of 3 years, but nominations are required each year. Nominations must be submitted by the PI and include trainee’s CV, documentation providing evidence that the PI can support the trainee’s salary and a letter briefly describing the trainee’s research accomplishments.

As FARA Fellows, trainees will be invited to attend round table discussions with other Fellows, present at the FARA Forum and at the FARA Flash Talks, and contribute their FA knowledge and results of their research to the FA CollaMap (https://www.collamap.org/).

Nomination must be submitted by June 1 via email to grants@curefa.org. For more information, please email grants@curefa.org
Grant program updates and announcements

The FARA forum webinars​

The FARA Forum is a monthly webinar featuring investigators who have been awarded FARA grants. The webinar is open to FARA grant awardees and it is held on the second Tuesday of every month. For more information contact liz.soragni@curefa.org

Feb 14, 2023 12 PM ET
Natalia Gomez Ospina - Stanford University

Mar 14, 2023 12 PM ET
Marco Carpenter - Children's Hospital of Philadelphia

COVID-19 emergency:
If you have been awarded a FARA grant, we will continue to request progress reports as they are due. If your work has been impacted by the COVID-19 emergency – for example if milestones could not be met or no work at all could be performed – we ask you to provide an explanation of how the COVID-19 emergency has impacted your research. We are also requesting that you inform FARA of what actions and measures are needed to assist you in restoring and reestablishing your research. We realize that there may be requests for re-budgeting and no-cost extensions and these decisions will be made on a case by case basis, FARA is implementing a maximum flexibility approach, to meet the needs of our research community and help its recovery.​

Please contact us at grants@curefa.org or liz.soragni@curefa.org, at any time if you have questions or concerns.

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Grant program updates and announcements

View special interest RFPs and other grant program updates and announcements here.

Newly awarded grants

Gene & Stem Cell Therapy​

Joseph Nabhan, PhD - Vesigen Therapeutics, Cambridge (MA)
Evaluation of ARMMs-mediated delivery of Cas9 protein complexed with gRNAs as a non-viral disease-modifying strategy for Friedreich’s ataxia

Changfan Lin, PhD - Caltech
Engineering adeno-associated viral vectors to evade immune responses

Mechanism or Pathway of Disease​

Pei-Yu Chen, PhD - Yale University
TGFβ signaling activity as disease biomarkers and therapeutic targets in Friedreich’s Ataxia

Sarah Robinson-Thiewes, PhD - St. Jude Children’s Research Hospital
Illuminating how SynGRs liberate gene expression from heterochromatin

Anna Stepanova, PhD - Weill Cornell Medical College
Calcium communication among intracellular compartments in FA patient-derived cells

Outcome Measures & Biomarkers

David Lynch, MD, PhD, Wiliam Gaetz, PhD & Timothy Roberts, PhD - Children’s Hospital of Philadelphia
Imaging of glutathione and GABA in the brain as biomarkers of Friedreich Ataxia

Louise Corben, PhD - Murdoch Children’s Research Institute
Measuring ataxia in children with Friedreich ataxia

Cardiac Research

Laura Kropp, PhD, MPH - Stealth BioTherapeutics
Advancing novel mitochondrial therapies for FA cardiomyopathy: a pragmatic collaboration to move new therapies forward


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