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In Memorium

 

Karye Willard

June 1, 1979 - May 16, 2013

Miss Karye Jayne Willard, 33, of Quincy, died at 11:30 a.m. Thursday (May 16, 2013) in her home. Born June 1, 1979, in Columbia, Mo., Karye was a daughter of Bruce and Marla Hardee Willard.

Karye spent most of her early life in Kenai, Alaska. Her family moved to Quincy in 1994, and Karye graduated from Quincy High School in 1997. She graduated in 2003 from the University of Illinois with a BS in biomedical engineering.

Chelsea Lane

June 25, 1993 - January 7, 2013

Chelsea

Chelsea opened her eyes every morning confronted with a new day of challenges and frustrations. Chelsea was diagnosed, at the age of five, with Friedreich's Ataxia (FA). She was born on June 25, 1993 and battled her disease daily. Chelsea eventually became legally blind and could not do any activities most of us take for granted, such as self-feeding, bathing, brushing her teeth, brushing her hair, or dressing herself. This disease robbed Chelsea of her independence, her dignity and her pride. Remarkably, despite the grim scenario painted above, Chelsea was cheerful, happy and loving.

Aaron Kittel

January 26, 1977 - November 3, 2010

Aaron in his own words several years before his passing, "Hello. My name is Aaron. I’m in my late 20s and live in Loveland, Colorado. I found out I had FA for sure when I was 19 and away at college. One year later my youngest sister, Allie age 5, was also tested and found to be positive for the FA gene. By my junior year in High School, I started using a wheelchair because my gait was clumsy; I fell a lot, and got really tired from walking all day. Two years later, I attended Colorado University in Boulder, Colorado. There I began using a wheelchair and a scooter full time.

Keith Andrus

December 21, 1985 - January 22, 2010

Keith was born just before Christmas 1985 and diagnosed with Friedreich's ataxia when he was in the 5th grade. Even though he eventually used a wheelchair full time, he didn't want to be defined by the wheelchair.

Keith had a huge shoe collection with over 20 pairs, mainly Adidas and Lugz.

He also had 11 tattoos. One tattoo across his chest read: "How much time do we have?" He knew his life might be shortened by Friedreich's Ataxia but he's enjoyed every day to the fullest.

Janice DeSaw

Jan

March 11, 1966 - July 17, 2008

"Janice was truly the most kind hearted person I ever met and imagine I ever will! The first time I met her was at the USGA, both of us in our 20's. She was still walking back then with the aid of a walker. I can remember holding the bathroom door open for her like it was yesterday and her very factually telling me that would not be necessary, for she could do it herself!! I can remember thinking now there is a self sufficient girl. She wants things her way and on her own terms. So, out of the way I stood in complete awe of her. Not because she mastered the task without any difficulty, but because she mastered the task, despite the difficulty. Well, our 20 year friendship bloomed from there. In all the years I've known Jan, I do not believe I had ever heard her say, "WHY ME" nor have I ever heard her feel sorry for herself. She was always much too concerned with how her illness may have been affecting those around her, to really give into her own grief over a body that was continually failing her. She possessed the greatest spirit and light you could ever imagine. All you had to do was look at her and you would smile, for you couldn't help but love her humble ways and warm friendly smile. Truly a friend to all those that were blessed to have known her. I will forever keep my friend Jan in my heart and remember her strong resolve for life , in the face of all the adversity that layed before her. She reminds me yet today, how very blessed I am to have known such a fine person and to have shared in her life. May you walk, skip,run and dance my friend. Till we meet again." - Love Always Vicky

"Jan loved all without regard to their position in life. She was a great friend to all. She appreciated life to the fullest despite the difficulties that were fated unto her. Throughout it all, she always wore a smile. She was always thinking about how to help others. She made us better people through her great spirit for life. That spirit will live on in all she touched forever. She was truly an "ANGEL" on this earth." - her BFF, Sheila

"My memories of Jan are many, I remember what a beautiful person she was, I remember how beautiful she looked at her wedding, I remember her beautiful smile and the gentleness of her eyes, I remember when we watched the the Giants and the Ravens play the Superbowl and what a loyal Giants fan she was, but I guess mostly I'll remember Jan for her great strength and courage and the grace in which she carried herself in all situations." - her brother-in-law, Donnie

"I am blessed to have known Jan as a friend. She had a wonderful spirit and shared her light to all those around her. Her light still shines in my heart." - her friend, Noreen

"Jan was such a shining light! It was a real pleasure to welcome her into our extended family, and we all enjoyed spending time with her in New Orleans and Philadelphia for family events." - her cousin, Dede

"I worked with Jan for many years at the USGA. She was the sweetest and most caring person. I wish there were more people like her. She always wanted to help others. I'm so glad I can say I knew her." - her friend, Sharon

"I am glad to have had the honor of knowing Jan. Her positive attitude was inspiring and made you refocus on what is really important." - her friend, Doug

"Jan was my best friend, and my true love. She gave me her beautiful smile, her patience, and all of her love. She could be as silly as a little girl one moment, and as wise as a grandmother a minute later. She was the kindest, the most gentle, and most compassionate person I have ever known. I will miss her, and I will love her forever." - her husband, Blair

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