An Alameda family with two children affected by a rare disease is participating in a fundraiser Saturday in a special way.


Father George Penston and daughter Izzy, 13, will bike in Ride Ataxia NorCal 2014 near Davis. The fundraising bike ride aims to raise financial resources and awareness of Friedreich's Ataxia, a degenerative neuromuscular disorder now lacking treatment. For the research benefit, Izzy will use a custom-made bicycle.

Read More: Alameda: Family riding to save lives, raise awareness of rare disease