Dear friends,

This monthly update contains updates from several pharma companies developing therapies for FA as well as notices for enrolling clinical trials. It is an exciting time for FA research. We recognize that the decision whether to participate in a trial is a significant one, requiring both a travel and a time commitment. Our aim is to help provide you with the information to help make an informed decision. Thank you to everyone who has given clinical research participation careful consideration. Together, we will treat and cure FA!


Jennifer Farmer,
FARA Chief Executive Officer

Other topics in our April Monthly update:
  • Pharma News
  • FA Patient Symposium
  • Minutes of Science
  • Ataxia Athlete Initiative (AAI)
  • Open & Enrolling Studies

Read the Full April Monthly Update