National Organization for Rare Disorders, Inc. (NORD) Issues Statement Applauding the Approval of Ensuring Access to Clinical Trials Act. FARA was one of the organizations advocating with NORD for this important legislation.

"The legislation has enabled those with rare diseases to receive compensation up to $2,000 for participating in clinical trials without having this compensation be counted as income when calculating eligibility for Supplemental Security Income (SSI) and Medicaid."

Read the entire article HERE