Several activities will come together Sunday at the Virginia Beach Sportsplex to raise awareness and money for Friedreich's ataxia, or FA.

About one in 50,000 people in the U.S. have been diagnosed with the degenerative, neuro-muscular disorder.

One of them is Tammy Leonard's 9-year-old son, Luke.

Tammy Leonard is the race director and organizer of the event, which includes a 5K race, a 1-mile fun run, food and games.

Leonard and her husband, Keith, first noticed troublesome signs with Luke when he was a toddler.

Read More: Va. Beach event targets neuro-muscular disorder