FARA partners with government agencies, corporations, and advocacy groups that support scientific research aimed at finding treatments and a cure for Friedreich's Ataxia.
We are very grateful for the support from all of our Partners.
The National Institutes of Health (NIH) is the premier US federal government entity responsible for biomedical research and is the world's largest funder of such research. FARA works very closely with the NIH in many ways. FARA has provided grants to a number of scientists that have used that support to develop the preliminary data they needed to submit successful applications for much larger NIH grants. FARA leadership has served on the National Advisory Council of the NIH National Institute of Neurological Disorders and Stroke and continues to participate in the Council's public meetings. FARA leadership has, at NIH request, made a number of presentations at NIH public forums involving other advocacy organizations, other federal agencies, and representatives of the biopharmaceutical industry. FARA has been active in helping rally public support for the NIH -- twice testifying before congressional appropriations committees to encourage more robust budgets for the NIH and working closely with other organizations such as Research!America in building additional public support for the NIH. To learn more about FARA's relationship with the NIH and FARA's effort to rally support for the NIH, visit our Advocacy page
The Food and Drug Administration (FDA) is the U.S. regulatory agency for food and medical therapies. FARA collaborates with the FDA to help educate FA scientists, pharmaceutical partners, and patient families regarding the regulatory process and to help educate the FDA regarding FA so as to maximize the prospects for successful development and approvals of FA treatments. FARA is also active in advocating for a more robust FDA budget, working closely with the Alliance for a Stronger FDA and Research!America.
We are grateful to our industry partners who sponsored FARA programs in 2020 including rideATAXIA, Energy Ball, the FA Biomarker Meeting, FARA Ambassador Training travel, educational symposia, the Collaborative Clinical Research Network, Biomarker research and the FA Global Patient Registry.