Accept Cookies?
Provided by OpenGlobal E-commerce

Please wait while your page loads ...

FARA Advocacy Newsletter - September 2021


Hill Day Registration is Open

Join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities.

The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. It will be a virtual event so every U.S. resident, regardless of where you are, can participate; there is no cost or need to travel. Instead, you can speak to your Congressional Members right from the comforts of your home!
More...
Read the Full Advocacy Newsletter
 

August Monthly Update for Researchers

Request For Proposals:
Pharmacodynamic Biomarker Development

FARA is issuing a request for proposal (RFP) to support the discovery and validation of non-invasive and quantitative methodologies to measure the following in FRDA affected tissues (brain, spinal cord or heart):

  • Frataxin protein levels
  • Biochemical activities dependent on/downstream of frataxin function that can be surrogates of frataxin in inaccessible tissues
You can access the full RFP here.

Please submit a Letter of Intent here.

More...
Read the Full August Monthly Update for Researchers
 
 

United Against Ataxia Hill Day - Registration Now Open

Registration Now Open

United Against Ataxia Hill Day
September 29, 2021

We invite you to join NAF and FARA in raising awareness about Ataxia and supporting legislation that directly impacts our communities.

The third United Against Ataxia Hill Day will be held on Wednesday, September 29, 2021. It will be a virtual event so every US resident, regardless of where you are, can participate. There is no cost or need to travel. Instead, you can speak to your Congressional Members right from the comfort of your home!

Register Now
More...
Read the Full Announcement
 
 

FARA job posting - rideATAXIA Event Coordinator

Click to view PDF
FARA is seeking a full time Event Coordinator for the rideATAXIA program.
Please click HERE to view the PDF.
 

FARA Minutes of Science - Episode 7


Episode 7- "The Balancing Act of Frataxin" in the FARA Minutes of Science (MOS) series is out now. Learn more about ongoing research in Dr. Jill Napierala's and Dr. Helene Puccio's labs to determine the appropriate amount of frataxin for therapeutic benefit.

Special thanks to Carli Hanson for narrating this month's episode.

And to catch the other episodes in the Minutes of Science series - View the full playlist
 
 

Page 1 of 107

SHARE

FacebookTwitterLinkedInYoutube

 

Archived in
  Scientific News


 

 

Tagged in
FARA Scientific News


Site Map     Privacy Policy      Service Terms      Contact      Charity Navigator