FARA Pediatric Research Initiatives Webinar

Location: Virtual
Dates: Thursday, January 25, 2024 at 12pm ET

This year, FARA will host quarterly webinars for participants to learn more about the organization's initiatives and how the community can be involved in this work. The first webinar will be on Thursday, January 25 at 12pm ET.

FARA's Pediatric Research Initiatives in FA
The onset of Friedreich's ataxia (FA) symptoms often occurs in childhood; thus there is a need for pediatric-focused research in FA. This session will include an overview of some of the pediatric-specific research and advocacy facilitated by FARA such as:

• The Pediatric Outcome Measures Collaborative Workshop
• A white paper on Clinical Trials in Children with FA
• Advocacy initiatives that promote pediatric inclusion in clinical trials
• Advocacy initiatives that promote pediatric inclusion in clinical trials

Register Here

After registering, you will receive a confirmation email with the link to join us. If you would like to submit questions in advance of the webinar, please click here.

This webinar will be recorded for public viewing for those that cannot attend as scheduled.